About this Site

The My Kidneys My Health website is an interactive tool that provides guidance and supporting information to patients with chronic kidney disease (CKD) and their caregivers. The goal is to assist patients and caregivers to learn about CKD and help them actively manage their CKD and slow CKD progression.

My Kidneys My Health content is based on current evidence-based clinical practice guidelines (Kidney Disease Improving Global Outcomes (KDIGO), Canadian Cardiovascular Society, Diabetes Canada, Canadian Society of Nephrology and Hypertension Canada).

Development

The My Kidneys My Health website was developed by the Can-SOLVE CKD Network self-management research team in collaboration with key stakeholders including patients, caregivers, nephrologists, nurses, dietitians, social workers, pharmacists and IT specialists from across Canada. The content included within this website tool was identified by patients with CKD and caregivers in a year-long Canadian study. For more information about the needs and preferences expressed by patients and caregivers, please refer to our study results summary, “Identifying needs for self-management interventions for adults with CKD and their caregivers: a qualitative study”:

Donald M, Beanlands H, Straus S, Ronksley P, Tam-Tham H, Finlay J, MacKay J, Elliott M, Herrington G, Harwood L, Large CA, Large CL, Waldvogel B, Sparkes D, Delgado M, Tong A, Grill A, Novak M, James MT, Brimble KS, Samuel S, Hemmelgarn BR. Identifying Needs for Self-management Interventions for Adults With CKD and Their Caregivers: A Qualitative Study. (2019). Am J Kidney Dis. 2019 Apr 2.

Funding

This work is a project of the Can-SOLVE CKD Network, supported by the Canadian Institutes of Health Research under Canada’s SPOR grant 20R26070 and the Interdisciplinary Chronic Disease Collaboration (ICDC).